I didn’t give myself cerebral palsy. It was something that was done to me, there is no getting away from that. I didn’t ask to be born with a disability, but I have it anyway.
According to the World Health Organisation (‘WHO’) the virus isn’t going away. If we come out of lockdown permanently, I have concerns on how I will cope trying to get back into my life. I can see myself self-isolating for another year.
A couple of weeks ago, I left a message for my doctor on line to let him know that due to Covid-19, I was self-isolating and wanted to know why the Governing Body, NHS England hadn’t sent me a letter, advising me to self-isolate because I have cerebral palsy. Cerebral Palsy was covered in a BBC article on Covid-19.
Through supplements and a change of diet, I am able to keep well, but overnight that can change. Through the years I have had to deal with respiratory issues, when I have often been left gasping for air: being premature and having cerebral palsy are both significant factors.
When I followed through on my message, I then placed a call with the surgery, which was met with condemnation when my GP rang back. Having to defend my corner throughout the call, he read out a list of chronic conditions from the ‘High Risk Patient list’ and yes, chronic respiratory issues were absolutely on that list.
As soon as I confirmed that was what I deal with and knowing he was wrong, he backed down. Having said he would get his practice manage to look into why I hadn’t received a letter from NHS England, I’d made my point. I was happy.
As yet I have received nothing back.