According to medical care professionals, cerebral palsy is a ‘non-progressive disorder’ that the physical functioning of a person with cerebral palsy will remain the same throughout that person’s life. I have been told the same thing myself and this is simply not true.
In the last six months, new physical problems have emerged that don’t correlate with the ageing process, or my age. For those of us who deal with cerebral palsy, the physical effects of cerebral palsy as we age will become apparent a lot earlier than our non-cerebral palsy counterparts.
Sadly, cerebral palsy is a developmental disorder in which physical functioning can deteriorate prematurely as a result of poor mechanical efficiency. Since I didn’t have this physical problem before and I do now, it is clearly a progressive disorder, but one that we can easily prepare for.
Charities like Scope and UCP seem to be more informed about the problems associated with cerebral palsy, more than the medical profession are. There is no medical help or guidance about cerebral palsy progression past the age of 18 and the information already out there on how we will all age with the condition is very limited.
My neurologist said that as we age, so will our brain cells and at that point, we will begin to experience more physical problems earlier. Our organs will have to work harder to compensate.
It stands to reason that as we go through the ageing process that will continue to prove more difficult.