Cerebral Palsy parenting

14 Jul 2016

Although a study by Newcastle University in 2007 suggests that children with Cerebral Palsy tend not to suffer a diminished quality of life, and speaking from experience, I believe it all depends on our parents and family as a whole, because this is where the emotional support starts.

It’s important for any child with Cerebral Palsy to have the input and support in the same way other children do. We need to have the parental and sibling relationship, the psychological wellbeing and friendships.

It’s not easy being a parent of a child with a physical disability, but that’s not an excuse for bad parenting, or emotional neglect. Some parents not only create negative attention on their child by not handling their child appropriately, but through their own ignorance and a lack of understanding of their child’s needs.

A parent’s inability to be able to deal with their own emotions, may also cause their child to struggle in developing a sense of individuality, but ignorance can be no excuse for a lack of understanding. It’s also no reason to hold a child back. All children growing up with a disability should be encouraged to engage emotionally.

When we have a sense of self we’re more likely to develop confidence, even with a disability. We’re no different than able-bodied people in that respect, we just have more needs. Perhaps it’s the world that needs to unite to learn about and embrace disability more.

Perhaps more of us should learn how to deal with those who deal with a disability, so that we’re more informed about other people’s needs. Unfortunately, those of us with a disability tend to be invisible. We tend to be spoken at, rather than spoken with.

It’s psychologically beneficial when any child or adult is spoken to directly, with a disability or not. As is often the case, standard procedures get in the way of personal conversation and contact. Everyone with a disability must be engaged directly.

Our relationships with those who are supposed to support us would be a lot better in many ways with the right support from parents and family.

2 Responses to “Cerebral Palsy parenting”

Post a Comment
  1. Brad 15. Jul, 2016 at 6:49 pm #

    Parenting is difficult enough, its a responsibility to do right by our children. Parenting a child with special needs must be even more so.

    I guess unhappy adults make unhappy parents.

    • Ilana 15. Jul, 2016 at 7:22 pm #

      It’s no excuse, but you’re right. Starting in childhood, unhappy adults do make unhappy parents.

Leave a Reply