I’m here again, but I still need to change certain aspects of my lifestyle, if I am to avoid any long-term complications with my health.
Every time I think I’m on top of my problems with reflux, I find I’m clearly not. With poor muscle tone, being premature and having Cerebral Palsy, it’s not surprising. I want to be able to live a normal life. Sadly, my life is far from normal. I know I will have adjusted better with more support growing up.
Unfortunately, it means that my family have to fit into my lifestyle so that I get to stay well for longer. Holidays are also a problem, but I’ll try to work round those as best I can. I hate the fact that I’m tied to this horrible disease, but I also know that if I don’t manage to sort it out in the longer term, I may not have any choices about my health, or my life. We all have to fit our lives around what we deal with.
Bizarrely enough, twenty-one years on, I finally understand what I’ve been dealing with for all of these years. My Doctor didn’t even know what my presenting symptoms were. If changing my lifestyle again means a healthier future, then that’s what I need to do. Last night I felt better and for the first time, I went to sleep with no reflux, no indigestion and no raised pillows.
I cannot remember the last time that happened. The sad reality for me is that I need to make these changes, before these changes are made for me. I have no choice on this one.