Secondary effects of CP

Being born with cerebral palsy meant that I would always have to deal with a wide-ranging variety of secondary conditions as part of the condition. These very much depend on the extent of the impairment and which part of the brain is damaged. I deal with some, but not all these conditions.

Secondary examples are outlined below:

  • Deformed bones and joints;
  • Sleeping issues;
  • Bladder and bowel control problems;
  • ADHD or ADD;
  • Issues with digestion;
  • Low bone density;
  • Seizures and epilepsy;
  • Heightened or reduced sensitivity of smell, sound and touch;
  • Respiratory issues;
  • Difficulty feeding and swallowing;
  • Poor nutrition absorption.

All secondary conditions resulting from the initial damage can change as we age, and that can make what we deal with harder. It is the secondary conditions that interfere with our ability to cope with our disability.

31 May, 2016

2 thoughts on “Secondary effects of CP

  1. I think people generally don’t associate Cerebral Palsy with secondary or associated effects such as the ones you describe.

    People just see the disability and that must make it even harder. It would be nice if everyone understand how wide the disability impacts on your life.

    All you can do is to keep as well as possible, look after yourself and do things at your pace and hopefully this will minimise the impact of these on your daily life.

    1. I think you’ve just highlighted a massive problem and I couldn’t agree more. Unfortunately there is a lot of ignorance and a lack of understanding around disability, in the community, in society and in families.

      For those of us dealing with a disability, (whether it’s mild or moderate) we need to have that understanding. For those who struggle with their disability, they not only need understanding, but also need support to be able to live their lives.

      I think and believe that if there was more understanding around disability there would be less misunderstandings and judgment on disability and what people think we should be able to do. There also needs to be more tolerance.

      I hope this particular blog has highlighted the inner workings on disability and how things are not always what they seem. More empathy and compassion wouldn’t go amiss.

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