If there is anyone out there with cerebral palsy who can relate to sensory problems, I would love to hear from you. It’s common for people like myself who have cerebral palsy to experience abnormal sensation and perception, but these are the things I’m having to work through for the first time.
Although this is something I have experienced my whole life, I have only really been able to make sense of it since I was diagnosed with cerebral palsy in my forties. The source is the central nervous system damage. Unfortunately, no two people with the condition will experience the same issues, because different parts of the brain are affected.
It is common for children with cerebral palsy to have visual and hearing problems. This is different from having a physical inability that prevents someone being able to hear or see things. When a child has a visual processing deficit, it means they have a hard time finding the words for objects they are viewing.
For example, and this is my issue, if a child is asked to go and get an object, they might look at it and then say they can’t find it. This is because they are seeing it, but their brains are not processing what’s in front of them. Similarly hearing integration problems are the same, the child hears what you say but the brain does not process what it hears simultaneously.
Indeed it may take several minutes for what you have said to click with the child and make sense. They may not get back what you’ve said but what the brain interprets. With little help out there and with our symptoms differing, it’s very hard for others to accept this is what we genuinely have to deal with on a daily basis.