I never really understood what I was dealing with as a child around my physical problems, what my symptoms meant or what they were. Now 47 years on and I still don’t know everything I need to know.
I was researching cerebral palsy and came across a Wikipedia note outlining the part of my brain that is damaged as a result of my stroke, called the Cerebrum (although the disorder is likely to involve connections between the cortex and other parts of the brain) such as the Cerebellum.
Symptoms are linked to the way the brain is affected even though the same part of the brain is generally involved in those who suffer with cerebral palsy. The Cerebellum plays an important role in motor control. It is also responsible for cognitive function such as language and attention.
When it comes to paying attention, a switch turns off in my brain. If I’m interested in something I manage slightly better, but I still fail to concentrate. I have brain fatigue, which adds to the problems with my concentration.
The connections between my brain and body are not wired in the same way an undamaged brain is. I would like to be more accepting of my condition, but in order to do that, I need to understand more.
I want to live alongside cerebral palsy comfortably without being judged for my shortcomings. At the moment that’s not the case. I spend my life being judged.
I need to know more about what having cerebral palsy means to me.