The more I have learned about my disability through my book, the more real it became, the more understanding of my disability I became. But how I got to this place so late, is something I will never comprehend.
Not to know who you are, or how and why you present the way you do, or what makes you the person you are with your difficulties is incomprehensible. We can tackle anything when we are informed, and have the facts.
As parents, it is out job to continue to make sure our children come first, make their children’s lives about them, so they can function in their own normal.
Not to allow us to live our life and be informed about what we deal with and particularly around a disability and for us to believe we might never understand ourselves or get to know about our disability is unacceptable to the point of being unforgivable, but I must be true to myself.
It is also not something you get over. But being one to put a positive slant on things, I will continue to stay positive. How I got to this place will always be shroud in negativity and secrecy.