A close friend of mine gave me this thought, which I want to share. Imagine how difficult it would be to run backwards; that would be the same for people like myself with cerebral palsy trying to move forward. The more we try and concentrate, the slower our brains work.
That is true for me. My brain periodically switches off like a light bulb, telling me I need to rest. The physical signs associated with cerebral palsy are clear, but to the untrained eye we appear to think in the same way as everyone else. However, what we deal with is very different.
We are completely ‘cross-wired’ emotionally and physically. During various discussions with my neurologist, he has confirmed that to compensate for the injury my brain is totally cross-wired.
Sadly, because of the lack of research on adult cerebral palsy, there isn’t a lot of information out there. And although it’s frustrating for others who have to work around our limitations, it’s always harder for us.