Although a study by Newcastle University reported in The Journal in October 2014, suggests that children with cerebral palsy tend not to suffer a diminished quality of life; I think it all depends on our parents and family, because this is where the emotional support starts.

It is important for any child with a disability to have the input and support in the same way other children do. In some circumstances they may need more. With a mild disability, children need to be connected with parents, siblings and friends for their own psychological wellbeing.

It is not easy being a parent of a child with a physical disability. Although it’s sometimes difficult for parents to understand how to look after their child with a disability, they must continue to handle them appropriately.

It is when parents have a lack of understanding of their own needs that they will have a lack of understanding of their children’s needs. As a result, their children may struggle to develop a sense of individuality.

But a lack of awareness must not be an excuse for a lack of understanding. It is also not a reason to hold a child back. When children grow up with a disability they should always be encouraged to engage emotionally with their siblings and friends.

When we have a sense of self, we are more likely to develop confidence. We are no different from able-bodied children in that respect, we just have different needs.

We must all learn about people’s disabilities so that we can be more informed about their needs. Sadly, those with a disability are sometimes invisible, they are usually spoken at, rather than spoken with.

For those who deal with a disability, standard procedures may get in the way of personal conversation and contact, but everyone with a disability must be, and deserves to be engaged directly. If that were to happen, their relationship with those who support them would be a lot richer and more rewarding.

http://www.thejournal.co.uk

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “Cerebral Palsy parenting”

  1. Parenting is difficult enough, its a responsibility to do right by our children. Parenting a child with special needs must be even more so.

    I guess unhappy adults make unhappy parents.

    1. It's no excuse, but you're right. Starting in childhood, unhappy adults do make unhappy parents.

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