I’ve never seen myself as disabled more than I do today. It is clear from how the ‘disabled’ are being cast aside, that yes, we are very much disabled and we're not a priority. If anything we're now seen as an inconvenience.

Vulnerable Groups are offered the Vaccine first 

Although vulnerable groups including the disabled were offered the vaccine first, in terms of decisions that have been made to get us back into our lives, we have been ignored and our lives having been sidelined.

With lifting restrictions, life is now centred around my home with everything having to be micromanaged, to make sure that I continue to stay safe.

New cases of Covid are rising

While the pandemic isn’t being spoken in the UK, it has been banished to the doldrums, with the UK government inferring, it is no longer a priority and yet we are seeing a rise in new cases.

It still is a talking point on social media with families continuing to talk about loved ones who were Covid free and who are now struggling with Covid. More and more people are still getting infected, so contrary to what we're being told, it clearly hasn't gone and the virus is 'still a thing.'

Fair and right decisions for everyone

As elected politicians, they should be putting their personal opinions aside. Making right and fair decisions for everyone is important. Banished to our homes, isn't what you would call governing with equality.

Facts are facts and those shall continue to surface, although in time, although around Covid that may reduce, but it's not gone. For those of us at ‘home’ because of lifting restrictions, it's not what you would call, in ‘our best interests’ and the internal conflicts continue.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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4 comments on “Living with a Disability in the Pandemic”

  1. It is a shame people are saying things like 'the pandemic is over' when it's glaringly obvious that's not the case.

    Yes, a woman in Maine actually said the pandemic is over on the news, but that's only wishful thinking seeing as she owns a hotel and wants the tourists to keep coming.

    I hate to imagine how frustrated you must be right now, seeing as you're pretty much a prisoner in your own home, due to current circumstances.

    We spent pretty much two years isolating to avoid Covid, and it only took a few weeks after my girlfriend's daughter moved in that her fiance and brought Covid into the house.

    It's just a prime example of society only being concerned about what works for them while the minority, (people most affected by the issues) are shoved aside and left to fend for themselves.

    We can only hope that things will change for the better very soon but as I would guess, you probably aren't holding your breath there either!

    1. When you say: 'It’s just a prime example of society only being concerned about what works for them while the minority, (people most affected by the issues) are shoved aside and left to fend for themselves' - thank you for this Randy.

      This is exactly how it is for me, how it's been since the start of the pandemic. I feel for you too. Even if you're not high risk, if you care about not getting Covid, you will always make provisions to live your life differently.

      It makes sense to continue to take care and in some cases, isolating is the only way to do it. I hope you haven't caught Covid.

  2. Living with a disability is hard enough on its own, but living with a disability in the pandemic doubly so and made much more difficult by idiotic decisions with governments who are more concerned but their own self-serving interests, than they are in looking after more vulnerable groups of society.

    Thankfully we have an opportunity for Boris Johnson's replacement to 'do the right thing' and ensure forthcoming policy decisions are more equitable, than hitherto.

    1. I couldn't have said it better myself. Where I struggle to find the words, your words are clear. I am part of the vulnerable group of society and yes, we have been totally overlooked.

      Being 'home' or 'four-walled' isn't how I envisaged my life would go. Living with a disability is a difficult pill to swallow, even more so in a pandemic, when my needs as someone disabled has been totally overlooked.

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