"It's 56 years into a disability I didn’t know I had, and there are new things that I am needing to come to terms with. Even though I didn't know anything about an affected left arm until I got my cerebral palsy diagnosis, my left arm did seem weaker.

Although I always found it easier to open things with my left hand, than I did with my right, I now have difficulty using both. Where my right side would compensate for the left, there is now progression on both.

It's already happening, as I find it difficult to pick things up with my left hand. Trying to open things with my stronger hand, such as bottles, deodorant with twist lids and opening certain car door handles is difficult. When it comes to car doors, I sometimes have to use both hands.

When I pick up supplements with my left hand, I struggle to grasp them, and they often end up on the floor. It’s a small but constant reminder of the challenges I navigate daily. I need to continue taking them because with IBS they play an important role in supporting my overall wellbeing and digestion. Certain foods continue to make me unwell, and supplements help bridge the gap, providing what my body needs. Managing health is about finding what works and staying consistent.

When my Consultant told me about cerebral palsy at the age of 46, he explained that as I age, my brain cells will too, and as a result of that, I may physically struggle. With no information out there on how we will age, what he says makes sense. I hate having had to bring the whole disability thing into focus on my own.  Not wanting to know isn't a good enough answer."

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “More on My Cerebral Palsy”

  1. While there may be reasons why others chose to ignore your disability, and you have blogged about those reasons previously, there is no good reason why they would do so, but that it is for them to reconcile.

    You've moved on from that and now know more about your disability. You know what is best for you, so you must keep on doing what you're doing and look after yourself; eat what you know agrees with you and avoid stress as far as possible.

    Your positivity will undoubtedly help you and as you continue to help others will encourage you on your path too.

    1. Thanks, yes. I try not to linger or stay in the past, because it will hurt me, but I do use it to write about my life and so that I can help myself in any way I can.

      I certainly know more about my disability, but the digestion issues I don't know a lot about, or how bad I really am because I deal with cerebral palsy.

      There is very little information out on the net about it, but you're right I need to do what's best for me. I shall continue to mindfully concentrate on that.

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