"I hate that autism means I have little natural animation to my smile that I show little or no emotional reaction through facial expressions to situations. I hate that I wasn't told I had autism, I hate that over the years, I have continually been misjudged and misunderstood, and still I continue to be misjudged and misunderstood.

I know what happiness, excitement, surprise, anger, fear, confusion, and sadness should look like – but when it comes to truly feeling them, I’m empty. I don’t naturally express emotions in the way others seem to, and it’s something that really frustrates me. I hate it. I hate how autism distorts my emotional world.

To truly empathise, I need to not only understand the emotions of others but also have the cognitive and emotional experience to connect with them. But with the challenges I face, it becomes hard to truly relate, even when I know the concept of sympathy.

Empathy isn’t just about understanding – it’s about feeling with that person, and having the tools to express it. With autism, those tools aren’t always there. We might know the words, but showing or telling our feelings in a way others get? That’s a different story.

I often struggle to pick up on social cues, which makes it difficult to express empathy the way others might expect. I can recognise empathy, patience, compassion and tolerance, but I don’t actually feel them. In my own way, through my words, I try to show those traits, but physically, there’s no emotional reaction to accompany them.

The real challenge comes in trying to fit my life into the world around me, shaped by autism. Because I look normal, I am expected to act “normal.”  The truth is, others need to share me with autism. It’s part of me. From there, it’s about us working through my struggles together. It’s not about me trying to fit in – it’s about others helping me navigate my journey."

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “My Emotional Reactions”

  1. People do seem to have a lot of expectations when it comes to how you react to what they're saying or doing a lot of times.

    I find that it's extremely magnified especially around the holidays when you're supposed to be so 'happy' but I'm usually feeling anything but happy.

    It is because I was brainwashed as a child on how to think, act and feel, most of the time, that I'm not quite sure of what my feelings are and if they're really my own.

    They tend to think that I'm extremely antisocial, but in reality I desperately try to avoid a lot of social interactions, seeing as I don't know how to relate to people in general.

    It would be nice to not have to deal with these issues, but there's only so much I can do to pretend that I'm normal.

    1. Thanks Randy. Like me, you can only to do what you can do, others must fit into your life.

      Yes, holidays are always the hardest, particularly this time of year coming up to Christmas. I understand how difficult it all is. Just do what you can do. Hopefully in time it will become easier.

      What I know is that those around you who want to be around you will always choose to make the effort.

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