"If someone were to ask me how the neurological aspect of cerebral palsy affects me, it would be a difficult question to answer. I have researched it, but part of my condition means I don’t recall information that well.

I find it hard to compare, as I have only my own experience of managing thoughts, feelings and memory to go on and finding out late, meant I adapted effectively without knowing at all. I have always known I struggle with anxiety. Knowing about autism explains it a little more.

My anxiety is the worst part, although managing change and having perception difficulties through my particular brain damage, means unfamiliar situations and coping with unexpected situations are difficult. I am lucky that I have learned how to connect with my intuition to manage my decision making. I’m not sure how old I was when I began to rely on them, but effectively they help bring about clarity and resolution.

The whole neuro autism issue is scary, primarily because of how I get to see the world and deal with issues, but with the help, others can help me pave the way for me to feel better about things. I am almost embarrassed I’m not able to do these things for myself, but I must also accept this is my life and what I have been given."

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “My Neuro Struggles”

  1. It is good that you're able to understand your neuro issues more. It must have been difficult not knowing anything at all and then having to work it all out.

    Now hopefully people around you will understand and work with you at your level, so that you don't feel anxious and that will help you manage your feelings more.

    1. Thanks. Yes, your response is spot on. I'm doing better, although it's not something I fully understand.

      Having presented this way for the whole of my life doesn't make it any easier. I know that I am more emotionally and mentally disabled than I am physically.

      I am in a catch 22, because it is the fact that I am more emotionally and mentally disabled that I struggle to get my symptoms back.

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