I hate that with autism my issues are issues until they become non-issues. I hate that every issue is a problem until it’s dealt with and that’s not as easy as it sounds – and others think I'm either awkward, stubborn or paranoid.

I Hate Having no Control

I hate having no control over my anxiety. I hate this isn’t just an autism problem, but brain damage resulting in cerebral palsy, brought about through the part of the brain that deals with my emotions, making it even more difficult for me to deal with my feelings. I hate that it’s taken me so long to learn about myself that I’m still having to learn. I hate that I was isolated and not talking about my disability made me more isolated and alone – that I wanted to talk about things as a child that I’ve had to work through all of this on my own.

I Hate the Expectations

I also hate that because my disability is mild, I've had expectations placed on me since I was a small child. Having gone through school and failed, in the early years those expectations were oh, it's 'just me' and doing nothing to help me.

Others failing to understand

The reality is that autism is a disability on its own. From the outset I look and behave relatively normal and that's become my nemesis and my biggest downfall, because it has allowed others to ignore, to not take the time to understand my symptoms.

I hate that no one accepted responsibility. I also hate that those who should have fought for me didn’t. My biggest hate is knowing this is something that may never change.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

Most people who read this blog

went on to read these blogs next
Date 26 July 2026
Author Ilana Estelle

Living with Difference

Seen, Misjudged, Rarely Understood For most of my life, I lived in the dark. Not because I didn't know I was different, but because I didn't yet have the understanding to explain why life always felt harder than it seemed to be ...
Read more
Date 24 July 2026
Author Ilana Estelle

The Hidden Effects of Loss

Some consequences aren't immediate, they're cumulative It's five months into four years through twin loss, and I've split another tooth. On its own, it's an ordinary event. But it's an event that made me stop and look back ...
Read more
Date 19 July 2026
Author Ilana Estelle

What Writing Taught Me About Self-Understanding

How writing became more than a creative outlet When I started writing, I had no idea where it would lead. I simply needed somewhere to put my thoughts – a place to make sense of experiences I struggled to understand ...
Read more
1 2 3 681

2 comments on “The things that I hate”

  1. I hear you Ilana, loud and clear. But I love the fact that you've been on a remarkable journey towards relief. You seem destined to go higher.

    What a pretty flower you turned out to be.

    1. That's kind, thanks Tim. Yes, I feel I've been on a journey, but there are days when I don't always feel relief.

      The sad reality is that my disability is as secret now as it was back then. I bring it alive through my blog, but it's still never ever spoken about.

Leave a Reply

Your email address will not be published. Required fields are marked *

Subscribe to receive regular updates

Enter your details below to be the first to receive updates on new articles on my blog.