Living with a physical disability, autism and now having to navigate a virus, life is difficult. According to the World Health Organisation ('WHO') the virus isn’t going away. We're in lockdown, but if we come out of lockdown prematurely, I like many who also live with a disability, will have concerns on how we will cope trying to get back into our lives. I can see myself self-isolating for another year.
Cerebral Palsy and Covid-19
I left a message for my doctor on line to let him know that I was self-isolating due to Covid-19, and wanted to know why the Governing Body, NHS England hadn’t included me, sending me a letter advising me to self-isolate because I have cerebral palsy. Cerebral Palsy was covered in a BBC article on Covid-19.
Cerebral Palsy and Respiratory issues
Through supplements and a change of diet, I am managing to keep well, but overnight I know that can change. Through the years I have had to deal with chronic respiratory issues, I am struggling with the whole virus concept. Being premature and having cerebral palsy are both contributing factors.
Chronic Respiratory Issues and Covid-19
I followed through on my message, and then placed a call with the surgery, which was met with condemnation when I spoke to my GP (General Practitioner). Having to defend my corner throughout the call, he read out a list of chronic conditions from the 'High Risk Patient list' for the pandemic, and chronic respiratory issues were on that list.
As soon as I confirmed that was what I deal, he backed down. Having said he would get his practice manage to look into why I hadn’t received a letter from NHS England. As yet I have received nothing back.
You have a disability, it's not right you had to potpie your case to your doctor, when it was their responsibility to ensure you were informed what to do during lockdown in the first place.
I am pretty sure I have read, it is the doctor's responsibility to inform all vulnerable patients and it sounds like your doctor is a bit of a pompous, self righteous nightmare and it may be that you won't receive your letter.
You proved your point and thankfully you know the do's and don'ts to minimise your risk anyway.
Thanks. Yes, it would be lovely to think I wouldn't have had to do what I've had to do, yet again.
I am tired of having to fight my corner around my disability. I am tired of having to make my point, where it would be for others to make my point for me. Yes, you may be right about the letter.