Having been to my doctors today, I set to working on the information I was given for another possible lead so that another Consultant can help me with my Cerebral Palsy.

Having now made a few phone calls, the name of the consultant I was given this morning hasn’t worked out, but his secretary has put me in touch with someone else who may be able to help. Nothing is concrete, but I am happy with what’s happening so far. It’s a positive lead, more than I’ve have had so I’m positive.

Having to work through the whole Cerebral Palsy issue has brought back so many thoughts. I am angry and frustrated again that I have no choice but to put together more pieces, because pieces to the jigsaw still don’t fit. At 48 years old I still fully don't know what I'm dealing with and to this day my father still tells me he doesn’t know anything.

The letter I have from my doctor with a diagnosis when I was first diagnosed doesn’t match my symptoms. All I knew when I was growing up was that I my muscles didn’t work on my left side; my left foot was different to my right and I had a leg shortening on my left side.

The phone call has finally come through and I now have an appointment scheduled for the 15th September. Hopefully at that appointment I will have the opportunity to find out more.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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6 comments on “Another doctor's appointment”

  1. I hope you get some answers.

    You have dealt with so much and are still positive about it. I think I would have given up a long time ago.

    I admire you for your persistence in the matters you deal with daily. Wish I had your positive attitude and persistence! You go girl!!

  2. I hope the new Consultant will be able to provide all the answers you are looking for. You deserve at least that.

    1. I hope the Consultant will too. Not sure how much he will be able to help me, but knowing something about what I deal with, will be a start.

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