With a compromised immunity and cerebral palsy I am high risk Covid-19, made difficult because I have autism. After 2 months of lockdown I feel I am finally adjusting better. Until I am able to make the connections there is no joined up thinking. With our liberty being snatched away, my regular autistic routine has slowly been replaced with a different routine, one that I have struggled to adapt to.

Autism and Lockdown

Autism and lockdown don’t work well together. Being told by the World Heath Organisation ('WHO') the virus is here to stay, is not resting comfortably. The UK's government's handling of the virus, means the virus is adding to my stress that and the fact that I am ‘high risk.’

Confined to my home

I shall be confined to my home after lockdown is officially ended, unless measures are made mandatory, until the UK gets a handle on the virus. Even something like going to the hairdressers will have to be meticulously planned, so I am protected. I'm a little nervous. It being a world-wide issue has exacerbated the problem.

Having and managing an already compromised immunity, with cerebral palsy and autism, makes the pandemic feel very scary.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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4 comments on “Autism in Lockdown”

  1. It must be very hard for you, dealing with the additional pressures and anxiety of lockdown and the uncertainty of managing over the next few months as measures are eased.

    Hopefully as a society we will respect everyone's needs and those that need to, will work around you at your level not 'average Joe's' convenience.

    1. Yes thank you. If the shoe were on the other foot, others would expect the same from us.

      I do think the pandemic has brought out a different side to the human condition and although we know the human condition is already flawed, it is flawed even more. We must work together moving forward.

      If we're not doing it now when will we? Starting with governments we must change moving forward.

  2. This makes me wonder what my daughter is going through. I'm sure that it has been very difficult for you as far as throwing off your routine. It has been a huge adjustment for all of us.

    The worst part out of all of this has been the people who choose not to follow any of the rules, which defeats the purpose of what everyone else has been doing.

    It's ridiculous as it proves there are those out there who don't give a damn about anyone but themselves. They seem to think themselves immune to the virus, but what about everyone else that they could infect if they end up being a carrier?

    I'm waiting to see how many more cases we're going to end up with here in Maine, because people come just 'for the weekend' from other states and refuse to do the mandatory 14 day quarantine.

    1. Thanks Randy. Yes, autism and lockdown doesn't work. We can only help and protect ourselves.

      I hope your daughter is coping with what she has to deal with around the virus. Not easy times for any of us. It's important we all think about and work together moving forward.

      I believe the virus is here to teach us the lessons we need to learn. To become better at looking after ourselves, each other and the natural world.

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