The definition of institution: 'The act of instituting.' - thefreedictionary.com

In the pandemic, for those who are already institutionalised, they have never made it out of those institutions because of the pandemic.

Still Home

Like me, there are probably hundreds of thousands others still living in our own institutions in the pandemic. Those like myself with a disability two and a half years into Covid and we’re still home. With all restrictions lifted in the UK what choice do we have, but to impose every day lockdowns?

Individual needs

The UK government who have disbanded with all restrictions have made those who are high risk and vulnerable more restricted. Realistically I am home, and being high risk, I am left with no choice but to wear a mask and visor, if I do manage to get out, just so I can leave the house. Politicians aren’t taking into consideration our individual needs, instead we’re being treated like everyone else and that is inappropriate.

Being institutionalised

My life has changed irrevocably. I'm living in a modern world, in a world where I am literally institutionalised, institutionalised because I live with a disability. Each day is a mental struggle, each day is a repeat of the day before and I struggle to reconcile.

If it wasn’t for my writing, what would I do? My home has become a confinement rather than a home and while UK politicians are in denial that the pandemic still exists, people like me with a disability are continuing to be confined to our homes.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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