"I hate that autism is the reason getting myself out of the house is proving impossible, particularly in the pandemic. I hate the fact that my autistic traits are continually being put to the test.

Me coping with change is difficult. With a normal thinking brain, we trust the advice we receive from others and that is usually enough to know things will work out. With autism, we first have to understand and be completely comfortable with what we're being told and in many cases, with our own choices.

Just thinking about stepping foot out of the house has been a struggle. A normal thinking brain adapts. Trying to live a normal life in the pandemic, is not easily achievable.

Not everyone knows how to best support us. I feel bad trying to exist around a disability I have no control over. For those like myself with a mental and emotional disability, these have become impossible times."

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “My Autism Struggles”

  1. It's good that after all these years you now know what you were dealing with. It can't be easy trying to navigate yourself around the pandemic with autism.

    You do very well. You have proved that with determination, we can manage our difficulties, even if it's not something we can overcome completely.

    1. Thanks. Yes, I have good and bad days around the pandemic dealing with autism. Being nearer to my disability through the pandemic makes everything so much more difficult.

      Having to live around autism is difficult at the best of times, it has become much harder trying to navigate autism around the virus and be comfortable with it.

      I would say near to impossible. I can only do my best.

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