I hated having to struggle through mentally challenging issues as a child later finding out it was autism; on the other hand, I love what it has allowed me to do and hate that I have been singled out because I live with a mental disability; it shouldn’t matter.

Living with a disability

I also hate the fact that for most, or all of my life I’ve had to defend my corner around a disability I didn’t know I had and still I was singled out. Through my blog and my book, my writing has allowed me to understand myself, my life and my experiences.

Autism

I hate how autism walks into a room before I do. I hate the 'autistic look.' I find ways through so that I make living with autism more palatable, bearable. Being diagnosed for the first time in 2019 with autism, means I am having to compete with new feelings.

Others should want to help us

And where relationships are concerned, for those of us with autism, others should want to continue to help us where we mentally struggle, particularly as we rely on structure, routine, sameness and a dichotomy between our interpretations and what we’re told. Other people’s failure to understand us doesn't help.

If people didn’t make us feel so awkward, we wouldn’t struggle with our disability so much. How we feel is how others make us feel and that results in difficulties.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “My life on the Autism Spectrum”

  1. I absolutely guarantee you that your spirit envelops any room that you enter, please understand that.

    In fact, you clear the pollution left by people masking as normal. Unlike you, they are subservient to illusion, not facts, not reality.

    Having said that, you are more fully yourself with autism, a gifted soul indeed.

    1. Thanks Tim. Yes, you've picked up how on how hard I'm finding that concept.

      I see through my own struggles other people's struggles clearly and am able to empathise. Beneath my anger as a child, I was that pleasing child, always putting family first.

      I see through an open, unclouded lens, looking at the whole, rather than half of something and that gives me an altogether different perspective. That said not everyone will know how to deal with those of us who deal with autism.

      I've heard it said that unless you walk a mile in another person's shoes, or you're at least willing to think 'outside the box' it is difficult to understand what someone deals with. But we should at least try.

      Whilst people generally think autistic people don't have empathy and compassion, they are the total opposite. We are deep thinkers and do empathise all the time with what others have to deal with.

      Yes, I couldn't do what I do without empathy, compassion or caring about others, I couldn't write in the way I do without 'my gift.

      Thanks for making me feel better.

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