"Not knowing I had autism as a child and growing up knowing nothing about what I had, later learning it was a physical and mental disability, made it more difficult for me to notice or understand my physical and mental symptoms in myself and others.

Autism and 'Odd Behaviour'

Even when I encountered someone with noticeably unusual behaviour, I couldn’t quite pinpoint what made it seem odd – I just knew something felt different. At the time, I had no idea it was autism.

There was someone close to me who would often drop a book in front of me and launch into an in-depth discussion about cricket, football, or rugby, reciting facts and figures with relentless enthusiasm. He didn’t know he had autism, and I didn’t recognise it as autism either – I just found his behaviour a little odd.

Now, seeing him occasionally and knowing that I myself am autistic, it’s clear he is autistic also. Looking back, and comparing his behaviour to mine, my own quirks almost seem ordinary.

Autism Ignored

Because I was able to conform reasonably well, everything was ignored. Growing up, no one stopped to question what my issues were. Up to the age of 46 and with a cerebral palsy diagnosis finally, I still was not aware I had autism. It would take another 10-years to get a diagnosis.

But autism is different for each of us. Having autism confirmed at 56 and being 108 on the Autism scale and spectrum, this guy would probably be scaled at between 200 out of 240. He struggles much more than me."

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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2 comments on “Seeing What's in Front of Us”

  1. It's so important if people present with symptoms that those people get a diagnosis so they can get the help they deserve and understanding from those around them.

    Your story should have been different, but it serves to show how important it is that symptoms are not brushed under the carpet, but are openly discussed so that decisions can be made in the best interest of the person involved.

    It's wrong to take that right away.

    1. Thanks. I agree. Yes, this is why it is important we speak our truth. Lessons must be learned so that our experiences are never repeated.

      No matter what we deal with or what our problems are, it is important children are protected.

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