Living with What Happened

Understanding is an important part of living with loss and grief.

For sixteen years, it has been at the heart of my writing. Much of that time has been spent trying to understand my disability, and the experiences that shaped my life. Looking back, I realise that understanding was never simply about finding answers. It was about making sense of what had happened and giving language to experiences that otherwise felt impossible to explain.

What remains now, however, is something different.

Not because understanding no longer matters, but because I am beginning to wonder whether it is no longer the question that occupies me in quite the same way.

Memoir often begins with a desire to understand what happened. Those stories matter because they give shape to experiences that might otherwise remain hidden. They allow people to say, "This is what happened," and, in doing so, begin to make sense of lives that might have once felt confusing or fragmented.

We all need to understand.

We all have questions about our own stories.

For many people, these questions are essential.

Why did it happen?

Why wasn't I told?

Why did I have little control?

Without questions, it is difficult to make sense of ourselves.

I recognise those questions because they have shaped much of my own life. I wanted to understand myself, the disability I only discovered later in life, and why some experiences stayed with me long after they had passed.

Understanding matters because it helps us see our lives more clearly. It allows us to recognise patterns, name losses, and make sense of experiences that once felt overwhelming. 

But understanding cannot do everything. There comes a point when it has taken us as far as it can. It cannot change the past. It cannot return what was lost. It cannot give us back the years we lost to grief.

The facts remain the same. The losses remain. We cannot rewrite our childhoods or undo the experiences that formed and shaped us. We cannot become the people we might have been had life unfolded differently.

So, when we reach that point, perhaps then another question needs to emerge.

How do I live well with what I now understand?

That feels like a different kind of work.

It is no longer about gathering more evidence or finding another explanation for the past. It is about deciding how we want to live alongside what we already know.

It's not an acceptance that says, "It was okay."

It's also not an acceptance that requires us to approve of the past.

Instead, it's a quieter acceptance that says, "This happened. It is part of my life. I don't have to spend the rest of my life grappling with it."

I am not sure that is peace, at least not in any final sense. Nor do I think it brings grief to an end.

But it may be the beginning of a different relationship with the past.

Living with a disability teaches you that some things cannot be changed. Over time, I have come to see the same is true of grief and loss. We carry them with us whether we want to or not.

There can be a freedom in recognising that our past no longer has to explain who we are.

It remains part of us, but it no longer has to define the whole of us.

Making peace is not about reaching the end of grief. I don't think we ever do. Rather, it is about allowing grief to take its place alongside the rest of our lives. It becomes one voice among many, alongside the ordinary business of living.

After sixteen years of writing, I am not searching for another explanation of my story.

It has become clear that understanding "my story" was only part of the work.

The work now is different.

It is learning how to live with what happened and what I know.

Perhaps that is what happens when the questions change. We stop asking the past to explain itself and instead begin learning how to live with what we have come to understand.

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Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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