I try not to complain too much, but with Eagle Syndrome, it's getting to the point where my tolerance of my pain is running out. I am really struggling to work through the pain barriers that I get to deal with every day.

My symptoms started with a swollen mouth ligament, two months after losing my twin, through stress watching my twin's health decline.

Acupuncture

My current treatment is acupuncture to try to bring some relief. Having now been diagnosed by a maxillofacial specialist and having acupuncture treatment and asked the question, my swollen ligament and teeth issue could well be linked to Eagle Syndrome, as this can cause inflammation locally. But those symptoms could also tie in with TMJ?

I am due back at the hospital in a couple of weeks to see my maxillofacial specialist. The ligament and teeth issue started around the same time as Eagle Syndrome.

Eagle Syndrome Difficulties

My difficulties with Eagle Syndrome is the pain triggers, and not knowing when the pain will strike. There is literally no warning. I have activated trigger points, including muscular dysfunction and nerve sensitivity.

Eagle Syndrome symptoms

Along with ear pain, other symptoms include difficulty swallowing; head pressure, ear pressure, headaches, neuralgia type symptoms also, pressure behind the eyes, watering eyes, sensitive to light and noise, general malaise and generally feeling unwell. I'm more anxious than usual and scared. Not knowing when the pain strikes is scary. The condition is debilitating.

I've currently had to stop exercising. The cold weather seems to have an affect on my triggers. Putting make-up on, even washing my face is difficult. I go to bed with pain and wake up with pain. I have no life, but I am trying to work on ways to get myself better.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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4 comments on “Eagle Syndrome Difficulties”

  1. Thank you for these notes. Sharing your life helps people like me, in their late 50s with Cerebral Palsy and no support.

    1. Hi Gloria, you're welcome and welcome to the site. I'm glad. Thank you. I'm so pleased my blog helps you.

      Yes, I've had to do a lot of workings out. Come to think of it, I've spent my life working things out.

      I'm sorry to hear you have also struggled without the support. Thanks for reaching out.

      I'm struggling with the fact that I now I have a different fight on my hands and I am in constant pain.

  2. Boy, don't I wish that there was something that I could do to make it better for you. It sounds horrible, especially considering it's on top of everything else you have been dealing with.

    It reminds me of when I had a cyst in my sinus underneath my eye, which took them a long time to diagnose and how much I suffered from it.

    You'll definitely be in my prayers.

    1. Thanks Randy. I'll take it. To add insult to injury, I'm not sure whether I also have something else that I deal with such as TMJ.

      There's always something isn't there? I'm glad you got to the bottom of your health and that you're well.

      I'll keep you posted on mine.

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