Growing Up With Difference and Learning to Embrace Who I Am

It’s necessary to talk about how you feel. To say what’s on your mind. It’s important to be heard. For as long as I can remember, I have always felt separate. Not completely outside it, not invisible – just removed enough to notice everything from a distance.

While other children embraced friendships and noise, I stood on the edge, watching. I learned early how to observe life instead of fully participating in it, while growing up with something I didn't know I had.

At the time, I didn’t understand why I was always anxious. I also didn't understand why I couldn't let go of issues, or why I couldn't switch thought patterns. I didn't understand why I couldn't play like other children, laugh or be silly about things.

Long before I had the language, I adapted by turning inwards. I learned to function quietly and to cope alone. While others explored the world around them, I explored the one inside my mind.

Decades later I learned that my separateness was about how my mind works. I process situations differently. Social situations feel unfamiliar even after I learn how to navigate them.

Where my twin immersed herself in school life, I continually observed it. Without realising, she was my bridge to a social world. I wanted to fit in –  but couldn’t work out how to access friends on my own. School felt like a daily test of courage. And I watched myself fail, day after day.

Exploring my mind has not only brought quiet contemplation about life, but it's also brought isolation. Yet within that isolation, something began to grow – emotional strength, resilience, and introspection. Over the years, my inner world became my refuge and my strength, supporting my mental health and personal growth.

It took five decades to realise I wasn't “normal.” With autism – I have taught myself how to be social. But through all of this I have learned I don't need to reshape myself to be accepted. I need to be myself. The right people will want to stay. Self-acceptance has taught me that my worth is not for negotiation and as a result I have stopped looking for acceptance.

Four decades in and my disability finally had a name. Writing was “the” way forward and The CP Diary was born. Through learning about myself, I found belonging, and healing. Through sharing my lived experiences of living with something I didn't know I had, I found my voice.

Growing up, ignoring my emotional and mental health around something I didn't know I had, wasn't for me to own – and it still isn't. Sitting with myself, for as long as I have, has quietly shaped my understanding of a difficult and lonely life. What once felt like limitations has become my quiet strength.

Autism and separateness isn't something I need to fix.

Belonging doesn't come from fitting in. It comes from being comfortable with who you are, from being real, and truthful about your experiences. I am comfortable in my own skin.

Through The CP Diary I have found my voice
Not by making it louder
Not by becoming someone else
But by holding onto what once kept me silent

And so, I continue to embrace my story and my voice, one article at a time.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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