Living with a Disability I Didn't Know I Had and Reclaiming My Voice

Growing up without knowing I had a physical, mental, and emotional disability still haunts me. For decades, it sent an unspoken message that my struggles were just a “me” problem – a personal failure, rather than a misunderstood condition.

The Silence that Shaped Me

That silence became my identity. It shaped my self-worth, my view of relationships, and how I moved through the world. When you're expected to carry something without knowing what it is, without emotional support, and without the tools to manage it, it doesn’t just affect your life. It can if you let it, define you. I worked hard for that not to happen.

In school, I was slow to write, to grasp even the basics. I couldn’t keep up with my peers. Back then, the concept of neurodiversity wasn’t part of any conversation. Even today, while we've made progress, un-diagnosed neurodivergent individuals, including many on the autism spectrum, continue to suffer in silence.

The Hidden Cost of Un-diagnosed Disabilities

Living with something you don’t understand, and that no one helps you name, is its own kind of trauma. It's a form of invisible disability discrimination, where social stigma and mental health stigma thrive, and where families and communities often fail to see the bigger picture.

Whether your disability is visible, invisible, diagnosed, or still misunderstood, it matters. And while it’s not an excuse, it's a reason. A reason to look for understanding. A reason to have the unconditional support with the understanding.

A Call to Normalise Disability

As someone who is neurodivergent, I speak from experience when I say: society needs to do better. We need more awareness, more mental health resources, and more acceptance of invisible disabilities, learning disabilities, and neuro-developmental disorders.

Disability is part of the human experience. Anyone can become disabled. And if we don’t normalise it, people will continue to suffer alone, un-diagnosed, unsupported, and unseen.

In many cases, the silence around disability stems from ignorance – or worse, the pressure for those with a disability to just "act normal." It was never my job to figure it out alone. I’m still processing what happened. Now I speak out for everyone with a disability – to let you know that your life matters and you're not alone.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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