Being uniquely different

Date 24 September 2018
Author Ilana Estelle
As a child, the only thing I wish I had were two legs and a foot that was the same as my other leg and foot, but I also didn’t understand why having a different leg and foot, made me uniquely different. I was too wrapped up in my emotions…
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My grandmother

Date 20 September 2018
Author Ilana Estelle
There is often one person in our life with whom we deeply connect, who emotionally understands us and who sees the world like we do. That person was my maternal grandmother. She was a good person with a kind heart, but like me, was often misunderstood. She was quiet and…
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A Confirmed Diagnosis

Date 13 September 2018
Author Ilana Estelle
The enormity of how I got to this place is clear from 8 years of writing blogs, particularly around a non-diagnosis, neurological symptoms and anxiety I didn't know I had, they all point to what I know now. My experiences have become a learning curve, no question there. But the…
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Dealing with my realities

Date 12 September 2018
Author Ilana Estelle
My personal thoughts on my disability are never far away and is the reason I’m putting out another personal blog today. My anxiety and autism The anxiety I deal with is centred around autism and is another issue I didn’t know I had. It’s something I’m going to have to…
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Autism Spectrum Disorder

Date 10 September 2018
Author Ilana Estelle
Since my cerebral palsy diagnosis at the age of 46, it has taken me an additional ten years of research to understand my presenting neurological symptoms and to find out those were part of the autism spectrum. The answers I have from my diagnoses explain who I am, how I…
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Piecing it all together

Date 8 September 2018
Author Ilana Estelle
In one of my blogs I talk about comorbidity and how comorbidity works around cerebral palsy and why because I have cerebral palsy I have co-occurring conditions as part of the initial diagnosis. I am proud because in spite of my circumstances, I have been able to piece things together.…
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Using My Blogs To Reflect

Date 5 September 2018
Author Ilana Estelle
I believe that although my more personal blogs outline issues that I’ve had to deal with over the years, or issues that I still have to deal with today, they serve a purpose for us all. My underlying messages My blogs carry an underlying message for us to think about,…
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More Pieces To The Jigsaw

Date 4 September 2018
Author Ilana Estelle
When it comes to us having and dealing with a disability, it’s important we choose to understand our symptoms and how we may present. Asperger’s fits my symptoms I am reading a book written by a parent and physician of a child with autism and it’s clear that my symptoms…
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Anxiety Bothers me the Most

Date 1 September 2018
Author Ilana Estelle
The hardest part of my life, isn’t cerebral palsy, it’s not getting the help I needed when I have spent the majority of my life living with anxiety, panic and overwhelming fear. Cerebral palsy doesn’t bother me, because I have understanding and am comfortable with it. There is no excuse,…
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New understandings

Date 29 August 2018
Author Ilana Estelle
Nine years after my initial cerebral palsy diagnosis at the age of forty-six, I am still putting pieces of the jigsaw together. Mild Cerebral Palsy Hemiparesis Thankfully, I now have a better understanding of my diagnosis. I have mild cerebral palsy hemiparesis (left side) caused by a bleed on the…
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No standard 'to work from'

Date 27 August 2018
Author Ilana Estelle
Growing up not knowing I had cerebral palsy, meant I had no standard or base line, from which I could judge by experiences, or which I could work from. Not knowing anything about my disability, meant that it was also difficult to explain how my symptoms presented in everyday ...
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Wilful Acts and Forgiveness

Date 23 August 2018
Author Ilana Estelle
It’s taken me eight plus years to work through my experiences. But one thing is for sure, I am not in the same emotional space before I started writing. I have come a long way. Understanding our experiences It is only when we work through our experiences and we’re looking…
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