A Cerebral Palsy day

Date 1 September 2016
Author Ilana Estelle
Cerebral palsy is never far from my mind. I hate how my life is governed by the condition and digestive problems. Being premature and struggling with digestion problems mean I can’t plan ahead, do days out, or do holidays well. Just going for a walk interferes with me being able…
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An early memory

Date 28 August 2016
Author Ilana Estelle
I have an early memory of looking in the mirror and checking the curves on my back. Even then I knew something wasn’t right, when my shoulders were extended and straight, my back wasn’t. I would constantly stand and tilt myself around, so that I could see my back in…
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Disability & isolation

Date 22 August 2016
Author Ilana Estelle
Although I never knew what was wrong with me as a child, I found myself working on internal dialogue in the hope that being positive would one day allow me to find out what I had been dealing with for years. Because my physical difficulties were always present, it made…
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Share your Journey

Date 12 August 2016
Author Ilana Estelle
Thank you for your support and for being part of this journey. Why not take it a step further and join the conversation? If you haven’t already, now is the perfect time to connect with others by sharing your thoughts and experiences ...
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Frustrations of a disability

Date 7 August 2016
Author Ilana Estelle
Having any physical disability as a child is difficult enough, but being part of a family may make it twice as difficult at times, because it’s easy to feel the odd one out, particularly if our disability singles us out. In my case, although comparisons were not explicitly being made,…
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A letter to myself

Date 4 August 2016
Author Ilana Estelle
I believe that to try to make head or tail about our lives, we need a certain amount of reflection to help us understand everything we need to know. If I had to write myself a letter on my thoughts and feelings about how I got to this place, this…
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My struggle days

Date 2 August 2016
Author Ilana Estelle
It’s a small but more personal blog today and I’ve felt better. One emotional struggle day has somehow turned into two and two turned into three. Those days don’t necessarily feel negative. In fact I’m not always thinking about anything. My mind’s often blank, or I’m not aware of what…
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More on my sensory disorder

Date 29 July 2016
Author Ilana Estelle
Having cerebral palsy and sensory issues combined, means there are days where I struggle. I have the usual stresses made all the more difficult because of combined sensory issues. I shall explain in more detail how Sensory Processing Disorder ‘SPD’ interferes with everyday issues, which those around me find non-challenging every…
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Critical Evaluation

Date 21 July 2016
Author Ilana Estelle
As children, we trust our parents and don’t stop to question whether what they thought was best for us was the best; as children I’m not sure we’re equipped. It became clear that decisions being made around my disability were wrong that where our parents have our backs ...
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A bad day

Date 7 July 2016
Author Ilana Estelle
Yesterday was a bad day. I’m happy to take responsibility for my own issues, I’ve been doing it for long enough, but we shouldn’t be made a scapegoat for other people’s issues that they’re simply not owning up to or dealing with. We must take responsibility for ourselves. Where struggles…
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Our approach to problems

Date 6 July 2016
Author Ilana Estelle
As a child, I never thought about whether I would eventually take on my parents' approach to problem solving, but it's easy to see how we would. As the years rolled on and I became the adult, I knew I had to find a different approach, because their approach didn’t…
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Being cognisant of our past

Date 3 July 2016
Author Ilana Estelle
I believe we need to be cognisant of our past. We can’t ignore that it happened, but must come to understand and find a way to accept that it did and be okay with it so that we can move on. Ignoring past experiences will only escalate into more bad…
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