My mum passed away on the 25th May 16 years ago and 16 years today on the 27th May she was laid to rest. Now I am being forced to look at my own mortality. In an earlier blog I talked about a Trigeminal Neuralgia diagnosis.

The added complication is that I'm not able to let the muscle in my mouth heal, because I'm using my mouth all the time, but I've also worked out the neuralgia also comes in from the temple and like a circuit, it permeates quickly within seconds, down the left side of my face.

I'll know more about the condition in June, but from initial research, the brain injury I sustained before I was born seems to be the reason why I have nerve pain. My concern is the pain will start making me mentally sick, if I'm unable to get a handle on it. It’s taking a while for the supplements to work, while I continue to struggle with chronic neuralgia pain.

My mental health

I'm not in a good mental health space, which is having an affect on my writing. Any chronic pain is difficult condition to deal with. I am trying to throw everything into it but I am mentally struggling.

My cocktail of supplements

To add to my cocktail of supplements, I have also been advised to try blue green algae and Spirulina to help with nerve health. It’s all a tall order as I continue to live with concerns on my long term health.

If there is anyone out there dealing with chronic neuralgia pain, or anyone who has been diagnosed with trigeminal neuralgia, please get in touch. I'd love to hear from you.

Ilana Estelle is a mental health and wellbeing advocate who combines educational insight with her personal experience of living with physical, mental, and emotional disabilities. She holds diplomas in Counselling, Diet and Nutrition, Nutritional Therapy, Psychotherapy and Counselling, and Stress Management. Through her writing, Ilana supports others in navigating their emotional, mental, and physical health challenges. In addition to writing for The CP Diary, her work has appeared in healthy lifestyle magazines. Ilana is also the author of three books: Cerebral Palsy: A Story – Finding the Calm After the Storm, Spirituality, Healing and Me, and Survival: The Covid Years – Time for Change.

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