Any form of neuralgia is hard to get past as I continue to struggle with even the simplest of things.
Fresh air, the cold, the wind, brushing my teeth, washing my face, putting on and taking make-up off, has created the pain I feel, which means I can struggle with simple, every-day things. Brain fog is also another issue. Eating, chewing, hot and cold foods can also start an episode. Although it has been confirmed by a holistic clinician, it has yet to be confirmed by a neuro consultant.
A late cerebral palsy diagnosis, a very late autism diagnosis, then 3 years of the pandemic with autism, then losing my twin, now neuralgia. That’s a lot of stones being thrown. I didn't need another stone. I’m struggling under the pressure of the pain, trying not to give up.
As a child my threshold for pain seemed quite high. My first encounter with pain was when I fell down the stairs at the age of 9 and being hospitalised.
But no matter how much physical pain you deal with, neuralgia is one of those pains you never get used to. I do think mine is idiopathic. I am throwing everything at the pain, and continue to take:
Vitamin C and an Omega 3 supplement
Vitamin D and Vitamin K
Topical Peppermint Oil
Topical Neurology Oil that includes four homeopathic remedies
Myelin Sheath support supplement (which includes Vitamin B12)
I am continue to take Folic Acid, Vitamin E, and magnesium, which are all good for nerve health. Through these supplements I have reduced my mouth pain and the muscle in my mouth is less tight. My headaches are still there.
If there is anyone out there is dealing with any form of neuralgia, we'd love to hear your story.
I've had neuralgia and neuropathy for many years, mainly due to type 1 diabetes, which I’ve had for 50 years. I use several essential oils and take multiple vitamins and supplements.
I had back surgery 7 months ago and had severe nerve pain in my legs that brought me to tears every night. The surgeon said it was due to having compressed nerves for so long, and the surgery released the compression and my nerves were healing.
There was nothing relieving the pain, so he prescribed gabapentin twice during the day and 2 at night. I ended up taking it 1 at night only because it made me sleepy during the day and even though I was still recovering from the surgery I had things I needed to do and had to be alert for.
I'm a lot better now and my legs and feet hardly ever bother me anymore. My legs are still weak, and my balance is still off due to neuropathy. I am in physical therapy and joined the gym with my husband and we work out twice a week at least.
I'm getting stronger but still have a lot of trouble with stepping up stairs or just stepping up. I have fallen, softly, several times due to leg weakness, but since I started using the weight machines and treadmill I have more confidence when walking.
The only trouble I've had is tripping due to numbness from neuropathy in my right foot.
Thanks Lisa. I can resonate with you on your pain. I am pleased you have found a way through your neuralgia. It's not something you get used to, it's something you may endure and it never seems to end.
Like you, I also take supplements that support never health. I also take off the shelf painkillers. I think I'd struggle with anything stronger, plus I am prone to side effects.
I remember my twin giving me Oxytech capsules and within 2 mins I was already heading to the bathroom. She was okay.