My Medical Records

Date 11 December 2017
Author Ilana Estelle
I don’t normally do two personal blogs back to back, but felt I needed further clarification on my medical records. I have become slightly agitated and angry at what I’m looking at, but it also doesn’t surprise me that there are gaps in my medical records between 1965 (the year…
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Symptoms and Diagnoses

Date 10 December 2017
Author Ilana Estelle
I wish I could say that all my symptoms are boxed and ticked under the right diagnosis, but sadly that’s isn’t the case. Yet more confusion. Some of my symptoms could form part of the Cerebral Palsy scenario and others part of the Spina Bifida diagnosis, but I may never…
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Overlooked vs Ignorance

Date 7 December 2017
Author Ilana Estelle
My childhood thoughts on how things happened are never far away. Although any disability being overlooked would have been bad enough as a child, it felt worse knowing that my disability was emotionally ignored. There is a difference between someone being overlooked and someone being ignored, particularly if it’s a…
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My Autism Symptoms

Date 3 December 2017
Author Ilana Estelle
I’ve had a lot on my mind recently since looking through my medical notes again. It is vital for any specialist to be informed about the child they’re treating. Had the specialist been told by my father, he will have come to understand that some of my behaviour traits fitted…
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A new cerebral palsy diagnosis

Date 1 December 2017
Author Ilana Estelle
At the age of two and a half I was being treated for a spastic monoparesis, although I didn’t know I had been diagnosed. Then, at the age of forty-six, after I had arranged an MRI scan, I was diagnosed with the same condition. When I was referred on to…
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My Spina Bifida diagnosis

Date 27 November 2017
Author Ilana Estelle
I initially dismissed having spina bifida because I had no obvious symptoms, but my medical notes clearly state that at the age of fourteen in 1977, that is what I had. In that same consultation, and again in my notes, the specialist confirmed that I would have some mental retardation,…
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Closure on particular issues

Date 23 November 2017
Author Ilana Estelle
It becomes a revelation when you come to understand something you thought you would never understand but you do; it’s also cathartic, if a hard pill to swallow. I also think it makes it easier when we understand because it helps us draw a line under our understanding, even if…
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More neuro symptoms

Date 19 November 2017
Author Ilana Estelle
Because my parents didn’t ask questions about my neurological symptoms, I am still having to piece those symptoms together through various medical notes. It’s a disorder that affects my emotions, self-control, memory and my ability to learn. Certain triggers I have mentally, have affected developmental factors over the years, which…
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A processing deficit

Date 17 November 2017
Author Ilana Estelle
I have always been happy for others to make their own decisions, but it’s the effect of their decisions that can sometimes interfere with my Sensory Processing. Because the sensory information is not processed properly or sent to the appropriate part of my brain, causing a neurological traffic jam, other…
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What was meant to be

Date 12 November 2017
Author Ilana Estelle
Although each blog forms an experience, writing about my disability, referring to my emotional and physical difficulties, not being addressed, explained or dealt with makes it even more difficult. Being a parent myself, it’s not easy to comprehend that this was my life. I find it hard to believe that…
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Falling into line

Date 9 November 2017
Author Ilana Estelle
Sadly, not knowing I had Cerebral Palsy, let alone neurological impairments, meant that I would always struggle to understand how to function normally in my life and in relationships, because of my neurological impairments. There is no getting away from that. It also meant those close to me would come…
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A life ignored

Date 5 November 2017
Author Ilana Estelle
When a child is taken to the family doctor, who then arranges a specialist consultation for that child that child then sees a specialist who then reports that child’s condition back to the family doctor. The family doctor then informs her parents, who don’t say anything. They take that child…
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